Challenges in conducting research with hospitalized older people with cancer: drawing from the experience of an ongoing interview-based project

Z. Chouliara*, N. Kearney, A. Worth, D. Stott

*Corresponding author for this work

Research output: Contribution to journalReview article

13 Citations (Scopus)

Abstract

Older people with cancer often face the prospect of cognitive and physical frailty, increased vulnerability of psychological distress and limited access to resources. These factors present ethical and methodological challenges for conducting research in such patients, especially interviews in acute care settings. This paper discusses these challenges using experiences from an ongoing research project. The project is a patient-focused study on the perceptions of older people with cancer regarding information provided to them, decision making and treatment. Interviews with patients aged 65 or over with a cancer diagnosis are conducted in two clinical settings, care of the elderly wards and a cancer centre whilst they are in-patients. Patients' cognitive and physical status are assessed using clinical measures, whereas socio-demographic and medical data are obtained from patient files. Ethical challenges, including procedures to obtain valid consent, as well as methodological choices, including recruitment procedures and patient conditions are presented and debated with reference to previous literature. Suggestions for future research with older people with cancer are made based both on current experience and previous literature.

Original languageEnglish
Pages (from-to)409-415
Number of pages7
JournalEuropean Journal of Cancer Care
Volume13
Issue number5
DOIs
Publication statusPublished - Dec 2004
Externally publishedYes

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Interviews
Research
Neoplasms
Patient Selection
Decision Making
Demography
Psychology
Therapeutics

Cite this

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title = "Challenges in conducting research with hospitalized older people with cancer: drawing from the experience of an ongoing interview-based project",
abstract = "Older people with cancer often face the prospect of cognitive and physical frailty, increased vulnerability of psychological distress and limited access to resources. These factors present ethical and methodological challenges for conducting research in such patients, especially interviews in acute care settings. This paper discusses these challenges using experiences from an ongoing research project. The project is a patient-focused study on the perceptions of older people with cancer regarding information provided to them, decision making and treatment. Interviews with patients aged 65 or over with a cancer diagnosis are conducted in two clinical settings, care of the elderly wards and a cancer centre whilst they are in-patients. Patients' cognitive and physical status are assessed using clinical measures, whereas socio-demographic and medical data are obtained from patient files. Ethical challenges, including procedures to obtain valid consent, as well as methodological choices, including recruitment procedures and patient conditions are presented and debated with reference to previous literature. Suggestions for future research with older people with cancer are made based both on current experience and previous literature.",
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Challenges in conducting research with hospitalized older people with cancer : drawing from the experience of an ongoing interview-based project. / Chouliara, Z.; Kearney, N.; Worth, A.; Stott, D.

In: European Journal of Cancer Care, Vol. 13, No. 5, 12.2004, p. 409-415.

Research output: Contribution to journalReview article

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AU - Worth, A.

AU - Stott, D.

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