Race in health research: considerations for researchers and research ethics committees

W. van Staden; A. Nienaber; T. Rossouw; A. Turner; C. Filmalter; A. E. Mercier; J. G. Nel; B. Bapela; M. M. Beetge; R. Blumenthal; C. D. V. Castelyn; T. W. de Witt; A. G. Dlagnekova; C. Kotze; J. S. Mangwane; L. Napoles; R. Sommers; L. Sykes; W. B. van Zyl; M. Venter; A. Uys; N. Warren

doi:10.7196/SAJBL.2023.v16i1.440

Race in health research: considerations for researchers and research ethics committees

W. van Staden^*
, A. Nienaber
, T. Rossouw
, A. Turner
, C. Filmalter
, A. E. Mercier
, J. G. Nel
, B. Bapela
, M. M. Beetge
, R. Blumenthal
, C. D. V. Castelyn
, T. W. de Witt
, A. G. Dlagnekova
, C. Kotze
, J. S. Mangwane
, L. Napoles
, R. Sommers
, L. Sykes
, W. B. van Zyl
, M. Venter

A. Uys, N. Warren

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

3 Citations (Scopus)

29 Downloads (Pure)

Abstract

This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.

Original language	English
Article number	e440
Pages (from-to)	9-12
Number of pages	4
Journal	South African Journal of Bioethics and Law
Volume	16
Issue number	1
Early online date	8 May 2023
DOIs	https://doi.org/10.7196/SAJBL.2023.v16i1.440
Publication status	Published - 8 May 2023
Externally published	Yes

Keywords

Race
Research ethics committees
Health
Clinical research
Variable
Population
Proxies

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van Staden, W., Nienaber, A., Rossouw, T., Turner, A., Filmalter, C., Mercier, A. E., Nel, J. G., Bapela, B., Beetge, M. M., Blumenthal, R., Castelyn, C. D. V., de Witt, T. W., Dlagnekova, A. G., Kotze, C., Mangwane, J. S., Napoles, L., Sommers, R., Sykes, L., van Zyl, W. B., ... Warren, N. (2023). Race in health research: considerations for researchers and research ethics committees. South African Journal of Bioethics and Law, 16(1), 9-12. Article e440. https://doi.org/10.7196/SAJBL.2023.v16i1.440

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abstract = "This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.",

author = "\{van Staden\}, W. and A. Nienaber and T. Rossouw and A. Turner and C. Filmalter and Mercier, \{A. E.\} and Nel, \{J. G.\} and B. Bapela and Beetge, \{M. M.\} and R. Blumenthal and Castelyn, \{C. D. V.\} and \{de Witt\}, \{T. W.\} and Dlagnekova, \{A. G.\} and C. Kotze and Mangwane, \{J. S.\} and L. Napoles and R. Sommers and L. Sykes and \{van Zyl\}, \{W. B.\} and M. Venter and A. Uys and N. Warren",

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doi = "10.7196/SAJBL.2023.v16i1.440",

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van Staden, W, Nienaber, A, Rossouw, T, Turner, A, Filmalter, C, Mercier, AE, Nel, JG, Bapela, B, Beetge, MM, Blumenthal, R, Castelyn, CDV, de Witt, TW, Dlagnekova, AG, Kotze, C, Mangwane, JS, Napoles, L, Sommers, R, Sykes, L, van Zyl, WB, Venter, M, Uys, A & Warren, N 2023, 'Race in health research: considerations for researchers and research ethics committees', South African Journal of Bioethics and Law, vol. 16, no. 1, e440, pp. 9-12. https://doi.org/10.7196/SAJBL.2023.v16i1.440

TY - JOUR

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AU - van Staden, W.

AU - Nienaber, A.

AU - Rossouw, T.

AU - Turner, A.

AU - Filmalter, C.

AU - Mercier, A. E.

AU - Nel, J. G.

AU - Bapela, B.

AU - Beetge, M. M.

AU - Blumenthal, R.

AU - Castelyn, C. D. V.

AU - de Witt, T. W.

AU - Dlagnekova, A. G.

AU - Kotze, C.

AU - Mangwane, J. S.

AU - Napoles, L.

AU - Sommers, R.

AU - Sykes, L.

AU - van Zyl, W. B.

AU - Venter, M.

AU - Uys, A.

AU - Warren, N.

PY - 2023/5/8

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AB - This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.

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DO - 10.7196/SAJBL.2023.v16i1.440

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JO - South African Journal of Bioethics and Law

JF - South African Journal of Bioethics and Law

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ER -

Race in health research: considerations for researchers and research ethics committees

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