The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care

Michael Brown*, Zoë Chouliara, Juliet Macarthur, Andrew Mckechanie, Siobhan Mack, Matt Hayes, Joan Fletcher

*Corresponding author for this work

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

Aims and objectives: To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences. Background: People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death. Design: A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis. Methods: Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice. Results: Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication. Conclusions: The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups. Relevance to clinical practice: This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.

Original languageEnglish
Pages (from-to)972-982
Number of pages11
JournalJournal of Clinical Nursing
Volume25
Issue number7-8
Early online date11 Feb 2016
DOIs
Publication statusPublished - 1 Apr 2016
Externally publishedYes

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    Brown, M., Chouliara, Z., Macarthur, J., Mckechanie, A., Mack, S., Hayes, M., & Fletcher, J. (2016). The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care. Journal of Clinical Nursing, 25(7-8), 972-982. https://doi.org/10.1111/jocn.13142