The regulation of health data sharing in Africa: a comparative study

Annelize G Nienaber McKay; Dirk Brand; Marietjie Botes; Nezerith Cengiz; Marno Swart

doi:10.1093/jlb/lsad035

The regulation of health data sharing in Africa: a comparative study

Annelize G Nienaber McKay^*, Dirk Brand, Marietjie Botes, Nezerith Cengiz, Marno Swart

^*Corresponding author for this work

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Abstract

The sharing of health data is an essential component in the provision of healthcare, in medical research, and disease surveillance. Health data sharing is subject to regulatory frameworks that vary across jurisdictions. In Africa, numerous factors complicate the regulation of health data sharing, including technological, motivational, economic, and political barriers, as well as ethical and legal challenges. This comparative study examines the regulation of health data sharing in Africa by comparing and contrasting the legal and policy frameworks of five African countries. The study identifies gaps and inconsistencies in the current regulatory regimes and provides recommendations for improving the regulation of health data sharing in Africa.

Original language	English
Article number	lsad035
Number of pages	22
Journal	Journal of Law and the Biosciences
Volume	11
Issue number	1
Early online date	18 Jan 2024
DOIs	https://doi.org/10.1093/jlb/lsad035
Publication status	Published - 18 Jan 2024

Keywords

Health data
Data sharing
Africa
Policy
Comparative study
Data governance

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10.1093/jlb/lsad035Licence: CC BY

Nienaber-McKay_TheRegulationOfHealthDataSharing_Published_2024Final published version, 408 KBLicence: CC BY

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The regulation of health data sharing in Africa: a comparative study

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