Transitions from child to adult health care for young people with intellectual disabilities

a systematic review

M. Brown*, J. Macarthur, A. Higgins, Zoe Chouliara

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.

Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.

Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases.

Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.

Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen.

Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.
Original languageEnglish
Number of pages17
JournalJournal of Advanced Nursing
Early online date28 Feb 2019
DOIs
Publication statusE-pub ahead of print - 28 Feb 2019

Fingerprint

Disabled Persons
Intellectual Disability
Caregivers
Health Transition
Delivery of Health Care
Nursing Education
Policy Making
Information Storage and Retrieval
PubMed
MEDLINE
Health Services
Nursing
Parents
Databases
Transitional Care

Cite this

@article{a45886b6bf9a434d9e40c2c614c8c222,
title = "Transitions from child to adult health care for young people with intellectual disabilities: a systematic review",
abstract = "Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases. Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen. Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.",
author = "M. Brown and J. Macarthur and A. Higgins and Zoe Chouliara",
year = "2019",
month = "2",
day = "28",
doi = "10.1111/jan.13985",
language = "English",
journal = "Journal of Advanced Nursing",
issn = "0309-2402",
publisher = "Wiley-Blackwell",

}

Transitions from child to adult health care for young people with intellectual disabilities : a systematic review. / Brown, M.; Macarthur, J.; Higgins, A.; Chouliara, Zoe.

In: Journal of Advanced Nursing, 28.02.2019.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Transitions from child to adult health care for young people with intellectual disabilities

T2 - a systematic review

AU - Brown, M.

AU - Macarthur, J.

AU - Higgins, A.

AU - Chouliara, Zoe

PY - 2019/2/28

Y1 - 2019/2/28

N2 - Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases. Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen. Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.

AB - Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases. Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen. Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.

U2 - 10.1111/jan.13985

DO - 10.1111/jan.13985

M3 - Article

JO - Journal of Advanced Nursing

JF - Journal of Advanced Nursing

SN - 0309-2402

ER -