Abstract
Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.
Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.
Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases.
Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.
Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen.
Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.
Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.
Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts databases.
Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.
Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen.
Conclusion: The range of issues that impact the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice and education.
| Original language | English |
|---|---|
| Pages (from-to) | 2418-2434 |
| Number of pages | 17 |
| Journal | Journal of Advanced Nursing |
| Volume | 75 |
| Issue number | 11 |
| Early online date | 28 Feb 2019 |
| DOIs | |
| Publication status | Published - 27 Oct 2019 |
Keywords
- Intellectual disabilities
- Complex needs
- Transitions
- Health services
- Young people
- Systematic review
- Nursing