‘What’s it like to have ME?’ The discursive construction of ME in computer-mediated communication and face-to-face interaction

Jennifer Guise, Sue Widdicombe, Andy McKinlay

Research output: Contribution to journalArticle

31 Citations (Scopus)
19 Downloads (Pure)


ME/CFS (chronic fatigue syndrome) is a debilitating illness for which no cause or medical tests have been identified. Debates over its nature have generated interest from qualitative researchers. However, participants are difficult to recruit because of the nature of their condition. Therefore, this study explores the utility of the internet as a means of eliciting accounts. We analyse data from focus groups and the internet in order to ascertain the extent to which previous research findings apply to the internet domain. Interviews were conducted among 49 members of internet (38 chatline, 11 personal) and 7 members of two face-to-face support groups. Discourse analysis of descriptions and accounts of ME/CFS revealed similar devices and interactional concerns in both internet and face-to-face communication. Participants constructed their condition as serious, enigmatic and not psychological. These functioned to deflect problematic assumptions about ME/CFS and to manage their accountability for the illness and its effects.
Original languageEnglish
Pages (from-to)87-108
Number of pages22
JournalHealth: an Interdisciplinary Journal for the Social Study of Health, Illness and Medicine
Issue number1
Publication statusPublished - 2007


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